Our Curse 2013

  • 2013-05-28
  • 27m
  • Tomasz Śliwinski
  • Poland
  • Polish
  • Documentary
The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the Ondine’s Curse (also known as CCHS, congenital central hypoventilation syndrome). People affected with this disease stop breathing during sleep and require a lifetime mechanical ventilation on a ventilator. The film shows the process of taming fear associated with the disease.

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